Cystic fibrosis when first diagnosed in a child can at first be crushing to parents. The initial feelings can be of sadness, despair, anger, frustration, and a host of other emotions. With the right support and understanding of the condition, some of these initial fears can be managed and a fulfilling and happy family life can be had.
We have great CF clinics in our area but in these challenging times we are living in, they cannot provide all of the support or funding for equipment needed to achieve a normal home life for the child.
Cystic Fibrosis Kids (CFK) is a group of friends and relatives of children with CF who wanted to provide support to our hospital and the families in our area. We aim to provide a positive approach to the challenges faced by both child and families and provide equipment and support to allow them to have as normal a life as possible. We also have a great relationship with our hospital team and this allows us to continue the support with in its infrastructure. This includes a listening service, yoga, dancing and other motivational support tools along with the traditional provision of medical and exercise equipment.
We are very much a team and are very approachable, so if you want to join in and help promote our positive efforts get in touch!
Read on for more info and an understanding about Cystic Fibrosis Kids.
CF Kids helps by providing equipment, such as fast up to date nebulisers, which can be an essential part of a CF child’s daily routine at home, but may not be available due to the NHS budget. The main idea behind our charity, Cystic Fibrosis Kids, is to raise and hold money in order to purchase various items and equipment which, via the hospital, can then be given to CF children or their families, according to their needs.
If you are interested in learning more, or taking part in fundraising, please contact us we’d love to hear from you!