Your Money

Since starting in 2006, CFK have worked closely with the CF team to ensure that the correct purchases are being made to benefit children at hospital and in the community.
Here are just a few of the things we have bought with the money raised and donated to date:

In the Home

Up to date Nebulisers

These can often be used up to 5 times a day. The advanced version we purchase cuts the time scale from 20 minutes (for a standard NHS nebuliser) to just under 4 minutes each session

Large garden trampolines and musical trampolines

Bouncing and jumping is a fantastic form of physiotherapy and is enjoyed by young children

Reward charts

Trying to keep children enthusiastic for their daily regime

Sterilisers

For keeping their equipment 'bug free'

Fitness Voucher Scheme

A donation from CFK to provide every family with £500 worth of exercise equipment to every family (ongoing)

Fitness Ball and Mats and Private Pilate’s Lessons

For use in the home with exercise and posture – excellent for posture control in older children

At QA Hospital

Inpatient meal tickets

For each admission, all CF children receive a meal ticket that they keep and it entitles them to as many meals/snacks from the hospital canteen as they wish for free. Additional nutrition is vital, even more so when they are ill. (ongoing)

Hospital reward box, badges and certificates

To reward the younger patients for their ‘bravery’ when having intravenous lines put in or blood tests done

Blockbuster account

Access to choosing free dvd’s or games at Blockbuster, hopefully helping making long admissions less tedious. (ongoing)

New lung function machine

This costly piece of equipment can detect lung deterioration early. It uses state of the art techniques to measure patients breathing or lung capacity, plus ‘games’ to encourage younger children and can also be used for other respiratory diseases, such as asthma.

Overnight and portable saturations monitors

CFK was kindly approached by an donor and arranged these to be purchased as there was a shortage on the wards.

Continuous Blood Glucose Monitoring System

State of the art system to monitor and detect diabetes in CF patients but using less frequent blood samples.