This page is designed with your input in mind!
Imagine your child had just been diagnosed with Cystic Fibrosis, and you had no idea how to get them to take their nebuliser, medication, or even what you were entitled to?
Parents that have had hands on experience with all the hurdles, hold the greatest weird and wonderful tips for enticing younger children to comply, or even know things that would be helpful full stop.
Please send us anything at all you can think of, here are just a sample few!
Speak to your local school/council about school dinners, some let your child go to the front of the queue to ensure they can get something they like Additional/higher calorie menu ideas can also be added.
For every child that receives Disibility Living Allowance, a CEA card can be purchased here.
For an annual subscription of £5, whoever is accompany the child to the cinema gets in for free.
The card is in the name of the child (photo needed).
To download an application form please see our Downloads page.
Probiotic drinks/chewable tablets
Probitoic drinks are a good replacement of some of the friendly bacteria that antibiotics can kill off These are also available in tablet form if your child doesn't like yoghurt drinks. You can find them in herbal shops - check the content with your pediatric nurse first!
Taking Creon/medication for younger kids:
The usual tried & tested way is the standard emptying the capsule on a teaspoon with yoghurt or puree.
Another idea was when you think they're ready to wean onto tablets, put a whole capsule under yoghurt on a teaspoon and they will probably swallow it without knowing!
Use of electrical trampolines are good for younger children as they can count the number of jumps, jump to music and even play musical statues! (CFK can supply these!)
Garden trampolines - takes up a lot of room but all for a good cause, right?!