Okay, so here are the Murphy-White's!

We have the double name due to the makeup of our kids. We're not posh honest!

My lovely wife and I got hitched in October 2008 following the birth of our little Rosie in April of the same year. We had been together for several years and we have been friends for a number of years prior to getting together. Tiff my wife has two great boys from her first marriage.

To keep our family connected to each other we adopted the name from the boys and felt it important for Rosie to have a connection to her brothers in name as well as blood. I settled down a little later in life than most and feel truly blessed to have such a great family.

Tiff really does fill our house with love and warmth and the kids love coming home from school to see what delights she has cooked for us. Cakes are a speciality and we even smile and love the slightly gone wrong Tiff specials!

She is Rosie's main carer and I marvel how she copes with it all and actually finds any time for herself. Tiff is a barber and works part time while I work full time as a site manager on a FM contract at a local navy base. While we are all at work or school she is busy keeping Rosie busy and taking her to various gyms and clubs to keep her fit and healthy. She relaxes in the evening playing scrabble on the internet with her friends.

Ben is our eldest and about to leave school. He has embraced his little sister and always looks out for her and is first to point out if anyone is not looking after her properly. He looks after her for us when we have the odd stolen night out together. Although his poor girlfriend has to do the nappy changing! I'm sure he has no sense of smell!

Ben is starting college in September and it has been a pleasure watching him grow in to a fine young man. We skateboard together and regularly go to gigs and festivals. Billy is the families stand up comic! He is the 'middle one' and is thirteen this year. He fills our house with humour and song all the time. I love his impromptu outbursts of song and dance.

Rosie and Billy play together and he always gives a bit of good old fashion big brother teasing. Billy is the creative one and our fridge and shelves have his drawings and models on. He is a demon chess player and loves days out at places like Goodwood revival and playing Warhammer including the model building and painting of course. He is equally happy chilling out & watching films.

Then we have our little Rosie, she is 100 miles per hour from the moment she opens her eyes to the moment she goes to bed.

Cooking in her kitchen, trashing the house or playing with her toys and having books read to her. She is happy as Larry and talks constantly.

Rosie also loves her food especially chocolate! She takes all her meds really well and at physio time is really good as long as Justin and something special is on the telly. We all love Justin! He is the only thing that slows the little monkey down long enough to feed her or hold her attention. She really embraces life.

Our best part of the day is tea time sat round the table all together, Billy telling jokes, Ben putting the world to rights and Rosie smiling and playing with her food. You See living with CF can be a positive thing and a good home life is key. The care she needs just becomes an everyday thing amongst normal family life.