Hi, my name is Sarah.

My son, Liam, was diagnosed with CF when he was 18 months old after he was repeatedly admitted to hospital as a baby with 'chest' related illnesses. He was given a sweat test 'to rule CF out', but to my dismay he was tested positive.

The day we were given the news, and how my world fell apart, will always be with me. Suddenly I did not know anything about my little boy who meant absolutely everything to me. After an overwhelming training up of drugs, physio and nebulisers we went home to try and carry on as normal.

Although this was hard, we immediately started seeing a positive change in Liam.
His Creon helped his stomach cramps and he started sleeping a bit better at night, his chest sounded a lot better when he was well and he just started thriving and growing like a normal child.

We have had some hard times with CF with cruel timings such as Christmas and birthdays, but now he is 8 years old and he has not been admitted for IV's for over 3 years.
As with all children with CF, to look at him you would think nothing is wrong and it doesn't stop him doing anything, in fact he excels in his football and loves loads of sports which is really good for exercise.

I started CFK in 2006 when Liam was 5 years old. Although I could ensure he took his medication and do his physic every day, I still felt frustrated that the one thing I wanted for him - to be cured - was out of my control, so I put my energies into the next best thing, CFK.

It was only then that I really got to know other parents with children with CF and exchanging stories made me feel a whole lot better. Once we were up and running and raising money and buying things to help the everyday monotony of CF I was feeling like I was doing at least something, anything to help.

We have gone from strength to strength and I have met some wonderful people and totally inspiring children along the way. I have shared good times and bad times with them but I never feel alone, and always have someone to talk to.

I'll admit to some things about CF I still bury my head in the sand, but nowadays I have a really positive outlook on Liam's life ahead, and given the personality he has I know he will be like a whirlwind and rocket through his life without once letting anything get in his way. For the life of me I don't know where he gets it from!!!