[image] Cystic Fibrosis Kids Logo




Meet The CFK Team!

Please click on each photo or read more link to see that person's story as to why they are involved with Cystic Fibrosis Kids of Portsmouth.


[image] Steve White

Chairman: Steve White

"I have lived in Portsmouth my whole life. In fact my family tree goes back to 1417 and I even have an ancestor's image as a stained glass window in the Cathedral in old Portsmouth." I was always out and about and blagging my way into parties and gigs, living life to the full and resisting the urge to grow up! I travelled the world seeking adventure and never felt complete, until I settled down with my lovely wife Tiff and my two great step sons. Read More >>

[image] Sarah Woolrich

Vicechair: Sarah Woolrich

My son, Liam, was diagnosed with CF when he was 18 months old after he was repeatedly admitted to hospital as a baby with 'chest' related illnesses. He was given a sweat test 'to rule CF out', but to my dismay he was tested positive. The day we were given the news, and how my world fell apart, will always be with me. Suddenly I did not know anything about my little boy who meant absolutely everything to me. Read More >>

[image] Kerry Hughes

Treasurer: Kerry Hughes

I am 37 years old and have worked as a bookkeeper for many years, running my own business. A few years ago, two of my best friends had a beautiful little girl, which is a time of celebrations! They were then told that their gorgeous little girl has cystic fibrosis which obviously was devastating news for everyone. I remember my friend telling me the news as if it was yesterday. I did not want to say “what’s that?”, so I looked it up on the internet. I was horrified when I saw that the average life expectancy is about my own age and all the implications that cystic fibrosis can cause. Read More >>

[image] Angela Turner

Secretary: Angela Turner

I am the Secretary for the CF Kids Charity in Portsmouth. I have worked with Steve for over 10 years and was initially asked by him to temporarily help out by taking minutes of the meetings for the Charity. Seven months later I am now a permanent member. Read More >>

[image] Becki Short

Webmaster: Becki Short

I am 21 years old, and my brother (Dan Short) has Cystic Fibrosis. I was tested for the CF gene when I was 14, and I am a carrier of the illness, meaning if I have a child with another carrier of the CF gene, we have 1 in 4 chance of having a child with CF. Living with a sibling with CF can sometimes be difficult, especially at a young age, you will quite often think they are getting special treatment/attention, when actually it is just because your parents are doing their medicine, or physio with them. There are so many things someone with CF needs to remember to do. Read More >>

[image] Vanessa Hamza

Trustee: Vanessa Hamza

28.03.99 was a day that changed my life all for the better. That is the day that my beautiful little girl Ella was born. She was born at St Mary’s hospital Portsmouth, but from the start it was not smooth sailing. We were soon transfered to Southampton Hospital & there Ella went under surgery for a Marchonion blockage. Then three days later we where informed Ella had Cystic Fibrosis. Like many families we had no idea what this was only the old images, of children having their physio done on Blue Peter. This was a very scary and black time for us all. Read More >>

[image] Kelly Fowler

Key Supporter: Kelly Fowler

I am 27 yrs old and my partner's name is Russell Griffin, 26 yrs old. We have a son called Riley who suffers with cystic fibrosis. Riley was diagnosed through heel prick testing at 1 week old and before this I had never heard of this disease. Neither of us have this in our family and as we both carry the faulty gene which causes cystic fibrosis, Riley has this genetic disease. It was a huge shock for us and our families and it took a while for us to come to terms with it. Read More >>