Welcome to Cystic Fibrosis Kids of Portsmouth!
We are a group of parents, family and friends of children with Cystic Fibrosis in the Portsmouth area who are raising money to help make the lives of children with Cystic Fibrosis in the Portsmouth, UK area better.
We provide equipment and support to allow them to have as normal a life as possible, and to keep healthy. We are also very much a community of families, and, although our children cannot meet, we are there to talk to each other when it is needed.
Click here to find out more about us.
If your world is new to CF
We are also currently working on a CFK parents section, where you can see how we help families in our area, but for now you can visit our top tips page for tried and tested techniques of how to 'cope' with a child with Cystic Fibrosis.
We need you!
We are currently looking for new people to join our committee. We understand that everyone leads very busy lives, so to maybe sway you towards joining us, here are the few things that by joining us we would like you to help out with.
1) Attending quartly meetings per year. (It's not all "business" - we also have a bit of a laugh!)
2) Helping out at / attending some events.
3) Spreading the word about CFK and what we do.
If you wish to help out, our chairman would love to hear from you - please email Steve on email@example.com. Even if you feel you cannot commit to joining our committee, please "like" us on Facebook and share our page with your friends. You can also follow us on twitter to keep up with all the latest news.
To find out more about raising money for us, please find your way to our fundrasing section where you will find lots of ideas of how you can help us raise money, including event ideas, information on donating through your payroll and donating online.
The Charity’s objects with the Charity Commission are:
The relief of children with Cystic Fibrosis in the Portsmouth area and who come under the care of the Cystic Fibrosis team at QA Hospital in Portsmouth by the provision of equipment and goods in augmentation of those provided by the National Health Service.