• Meet the Team

  • Meet the Cystic Fibrosis Kids Team

  • Sarah Dann

    Chair & Charity Founder

    My son, Liam, was diagnosed with CF when he was 18 months old after he was repeatedly admitted to hospital as a baby with 'chest' related illnesses. He was given a sweat test 'to rule out CF', but to my dismay he was tested positive. The day we were given the news, and how my world fell apart, will always be with me.

    We have had a roller coaster CF journey through the years and personalised medicine has been a massive game changer for us. I live in hope that this will progress and help all people with CF.

    I started CFK back in 2006 with a few other parents as it was the only thing at the time I had control of it came to Cystic Fibrosis. 

    The charity has gone from strength to strength over the years against all the odds and the energy and dedication of the trustees and supporters never ceases to amaze me.

  • Emily Gould

    Trustee & Treasurer

    I became involved with CF Kids in 2012 when my friend Steve asked if I could provide temporary cover as the treasurer. This cover evolved into a more permanent role in 2013.

  • Gemma Leigh Weir

    Trustee & Event Organiser

  • Tiffany Murphy-White


    Hi, my names Tiffany and I'm mum to Rosie who has CF. I became involved in CFK not long after Rosie was born, she's now in junior school and doing great. As soon as we got over our initial shock of Rosie having CF, my husband and I wanted to find out more and to help any way we could. Being in the charity is like having an extra family on tap to call on for advice and a shoulder to cry on, it's helped me loads. Rosie is our 3rd child, she has two older brothers Ben and Billy and together we make sure Rosie has a great life even if she has to do extra work and treatment to stay fit and well.

  • Steve White


    I have lived in Portsmouth my whole life. In fact my family tree goes back to 1417 & I even have an ancestor's image as a stained glass window in the Cathedral in old Portsmouth. I was always out & about, blagging my way into parties & gigs, living life to the full & resisting the urge to grow up!